It took doctors four days to determine Rosie’s sex when she was born. Her rare congenital abnormality caused her genitalia turn inside out and completely bent her legs beneath her.
A seven-year-old Rosie was born with Spinal segmental dysgenesis which means her spinal cord and nerves were never properly formed, long with causing bone deformities. When Rosie turned five-years-old her mother Amanda had to make the heartbreaking decision to have the girl’s legs amputated. Several weeks ago the brave woman and her daughter decided to share their story with the world.
Her mom said: “She was born with 25cm gap in her spine. Her legs were crossed. I used to call her my little Buddha. She wasn’t developed from the waist down, she had no bottom and her genitalia was inside out, so she was presenting as both boy and girl.
A seven-year-old Rosie was born with Spinal segmental dysgenesis which means her spinal cord and nerves were never properly formed, long with causing bone deformities. When Rosie turned five-years-old her mother Amanda had to make the heartbreaking decision to have the girl’s legs amputated. Several weeks ago the brave woman and her daughter decided to share their story with the world.
Her mom said: “She was born with 25cm gap in her spine. Her legs were crossed. I used to call her my little Buddha. She wasn’t developed from the waist down, she had no bottom and her genitalia was inside out, so she was presenting as both boy and girl.
Having her legs amputated was very hard because I always said it would be her choice. Rosie’s really switched on, she understands quite a lot of things. But the operation didn’t go smoothly. She got an infection after the op. She lost her kidney, her only good kidney because the other one has a split.”
But despite all difficulties in her young life Rosie continues living life to the full. She likes to zip about on a skateboard instead of a wheelchair, she likes dancing and enjoys much of the same hobbies as her friends.
